Hey Y'all, I know it's been two months with no update, well I finally have something worth posting. We finally got everything all coordinated and Molly is scheduled for her CT scan and sedated hearing test(ABR). This is what we've been waiting for, and it will tell us if Molly is a cochlear implant candidate! They will scan her brain and ears to make sure everything is formed correctly and also do the hearing test again, but Molly will be totally under. They will then be able to give us an official diagnosis and we can then begin talking about a timeline for implants. Its scheduled for the 16th, one week from today, at 8 in the morning. Which means we have to be at Scottish Rite at 6am, yuck. She cannot eat for 6 hours prior, but can have clear liquids up until two hours before. I figured since she is used to not eating in the middle of the night, this would easiest for everyone.
We also received results back from Molly's blood work and it came back that she has Connexin 26, which means she is genetically deaf. We are not sure yet if we both have the recessive gene or there is a rarer form in which it can come from one parent, but only on the x chromosome. Which could explain why Molly is deaf and not Adam. We won't really know until we meet with the genetic counselor at Emory, which I haven't gotten to schedule yet, as it is not as high on the priority list of appointments. Either way Aaron and I want to get tested so we know for sure and can let our families know, he has two brothers that haven't had kids and my two sisters have not as well. Plus it would good to find out if Adam is also a carrier.
Emotionally I think the test will be a little challenging. The idea of her being totally under is a little scary and I am not sure how much I'll be able to be by her side during them. I am pretty anxious about the logistics; her not being able to eat, my mom getting him to and picking Adam up from school, how will this effect her sleeping and eating. Ultimately, I know that God has known this day would happen and everything will be fine and extra courage will be granted to me and my husband. Needless to say, prayers and good thoughts for next tuesday will be welcomed and I'll have some more information to update then.
Those of you wanting to know more about Molly. She is the happiest baby and such a joy to be a Mommy to. This little girl is already teaching me so much about myself and my heart overflows with love for her. She is ALWAYS smiling, I don't think I've seen a baby smile so much. She has started laughing and for a deaf baby, or any baby for that matter, she is quite talkative. She is constantly babbling and squealing! She has figured out how to suck her thumb and continues to be a good eater, she was 12 1/2lbs at her last appointment. We've got her reflux totally under control with some good meds and she is sleeping at least 9 hours,sometimes as much as 11. All in all things are really going well and I cannot imagine life without this bundle of joy!
